Sincere Gratitude

Just wanted to let everyone know that we are 1 month strong into fundraising for Nolan. Because of your generosity, COTA has raised over $35,000 in this short period of time to support Nolan in his transplant journey. It has been truly amazing to see the outpouring of love, kindness and generosity, not only from those that know the Burgett family, but also from many who don't even know the family and were touched by Nolan's story. We ask that you continue to share Nolan's story and website because without the support from everyone, we would not be where we are today. Please keep the words of encouragement coming, as well, as your comments have touched Nolan and helped guide him in strength. Thank you from the bottom of our hearts!!!

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Health Update

We are so grateful for all of the love, support, and prayers we've received from all of you!  The words of encouragement and monetary support for Nolan's health needs has been truly amazing- thank you! The past two months has been quite the journey, but I believe we are getting close to transplant!  I thought I would highlight our journey over the past couple of months to let you know where we are in the process​s:  

  • August 30:  Three day extensive transplant evaluation at Children's Hospital
  • Sept. 1:  Surgical procedure to insert a peritoneal dialysis catheter in his abdomen
  • Sept. 19:  Nolan and I went through a two week dialysis training to start peritoneal dialysis at home
  • Sept. 21: Appointment with Paleontology to test that his lungs are clear and take off of the steroids
  • Sept. 29:  Started peritoneal dialysis at home (every night for eight hours while he sleeps)
  • Oct. 12:  Began series of immunization vaccines.  Transplant patients can never have a live vaccine after transplant
  • Oct. 27:  Appointment with Rheumatology- ran series of blood tests to test for other autoimmune diseases.  Results came back with no sign of other autoimmune diseases!
  • Oct. 30:  Large stretch marks have appeared on his back due to steroids and dialysis- treating nightly with cream.
  • Nov. 2: Had MMR and varicella live vaccines
  • Nov. 30:  Still working on getting rid of previous planters warts on right foot.  He has had 5 liquid nitrogen treatments so far- they're getting close to being gone.  They need to be completely gone before transplant since they are a virus, and the immunosuppresant meds. he will be on will make his immune system weak for a period of time.  
  • Dec. 2:  Should be clear for transplant soon!  Family members are still going through donor compatability testing.  We are praying for a match!